What is it like to have ALS?

If you would like to experience just a tiny corner of an ALS life, I have a list of empathetic experiences for you. These are things you can do to walk for just a mile in ALS shoes. If you try one, take a little time at the end to consider that people actually living with the disease have a million miles more to go. read more

To have ALS these past weeks has been to be a sort of disease celebrity. Even if you’ve been doomed with the fatal diagnosis, the #ALSicebucketchallenge got you tons of Facebook tags and notifications. read more

With modern technology you can have an active social life and, with assistance from the physically abled, can be quite productive. The question was a little broad so if you would like more visceral details, just ask. read more

ALS is a progressive disease, which means it gets worse over time. It affects nerves in your brain and spinal cord that control your muscles. As your muscles get weaker, it gets harder for you to walk, talk, eat, and breathe. read more

There are two different types of ALS, sporadic and familial. Sporadic, which is the most common form of the disease in the U.S., accounts for 90 to 95 percent of all cases. It may affect anyone, anywhere. Familial ALS (FALS) accounts for 5 to 10 percent of all cases in the U.S. Familial ALS means the disease is inherited. read more