People with prader-willi syndrome often have an insatiable appetite, and significant intellectual compromise, leading to severe overweight unless all food sources are literally locked up and meal portions are tightly controlled. read more
Like many other families who are thrust into the world of rare disorders, we had never heard of PWS before Nolan was born. The geneticist explained how Nolan has a deletion on the paternal number 15 chromosome, for which there currently is no cure or effective treatment, and a whole new world opened up to us. read more