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What is it like to live with spinal muscular atrophy type-3?

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Life expectancy for children diagnosed with SMA Type 3 is normal5 and most people live long and fulfilling lives. How is SMA Type 3 diagnosed? .... Although your child will lose muscle strength over time, it's important that they maintain activities like standing and walking for as long as possible. read more

I was diagnosed with SMA type 3 after a series of muscle biopsies couldn't find any muscle tissue back when I was 5 (which is nearly 4 decades ago). SMA Type 3 (also referred by the name Kugelberg- Welander) is an interesting disease to have. read more

Living with spinal muscular atrophy (SMA) is challenging. Staying informed about the condition is important to give your child what they need to live a fulfilling and healthy life. read more

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